Fanconi Anemia | blog | Our Little Taste of Heaven

O U R

Nov 15, 20245 min read

Halloween photo: Emma is with her sister, Ella (bald man), and her cousins, Bella and Amelie, ready to go trick-or-treating. That's one...

Jan 18, 20243 min read

I’ve been wanting to write this post for a while, updating about the holidays and the bucket list adventures, but that got side tracked...

Dec 11, 20231 min read

Good morning! We want to send a huge thank you to those who supported us through our new little Etsy shops (here and here). Thank you SO...

Dec 4, 202316 min read

(Oops, I accidentally posted this before I was done with it...) Hello again! How is everyone? I know it’s been a while, but we’re still...

Jan 19, 20232 min read

"And besides, there's so much beauty in a storm..." Living in Texas for a lot of my childhood, I was used to the word "storm" meaning a...

Jan 12, 20231 min read

"Let me love you a little more before you're not little anymore." While I dislike seeing our children sick, like our Ella was here, I...

Life is about change.

Sometimes it's painful,

sometimes it's beautiful,

but most of the time

it's both.