Guys, these motility studies are no joke. 30 hours of being stuck on her back, no rolling over or getting up, and not even being able to...

This morning was busy. We woke up at 6am to a care assistant waking Emma to get her weight. A lot of eye rolls later (from Emma's...

I'll write a more detailed update later, but to answer texts & emails, we are still in the hospital. We thought we might go home last...

(If short on time, scroll to the end.) As the sun began to set last night, Emma asked me to pull the curtains back, so she could see the...

We took Emma to the emergency room, due to her progressing to the point of not eating by mouth, while in the midst of a week with no...

It's been nearly five weeks since she stopped taking feeds. Since the last update, she has slowly started taking more formula (maybe half...